NOT a fun way to watch Toy Story!

Well, we took our kids to see Toy Story 3 yesterday and I was really excited to see it. I'm still looking foward to seeing it now that I missed my chance yesterday....I guess I'll have to wait for it to come to video..let me back up...

Saturday I found myself in misery with another seizure..I've been seizure free since May 2nd so I wasn't too happy about this new development. Sunday and Monday I ended up with really bad headaches plaguing me for a good portion of the day. Yesterday I had 3 different headaches.

As you can guess the third headache came during the movie. It was so awful I was considering how to to get myself to the E R. I just couldn't stand it! I only made it about 20 minutes into the movie and by that time I was in tears and had to leave the theater. I don't think sobbing is part of the experience of being at the movies. This is the first time we've taken our kids since Cars came out when Dallyn was a baby so this was SAD for me to not be there with my kids.

But I went out to the car and suffered for the next hour till I was able to get home. The pain decreased about 10 minutes before we left the movies and I was so grateful, at least my kids didn't have to see me crying!

So I am now taking Tylenol preventively and I've increased my steroid use from 1 1/2 to 3 mg a day....URGH...I'm not happy about it but the pain I endured yesterday was just too much for me. So I've resorted to drastic measures. But I'm sad...really sad its come to this...

Additional Note: Today I talked to my nurse and told her about my seizure on Sat...like I expected she has told me that I need to go on anti-seizure meds....so later today I'll go pick those up. I'm discouraged. I don't want to be a druggie and I don't want to have seizures. I've been through this enough I think. But I guess its not about what I want.. =(